Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Liz, I sm so sorry you are struggling with your husbands after effects. I see many caregivers go thru so much with the patients always keeping a brave front. To me it sounds like the horrors of this horrendous disease have finally sunk in. It is not east when you are faced with reality that your husband will never be the old person he was. Sure he can come close but it wont ever be the same.
Many caregivers seek out therapists or some professional guidance to manage their coping skills. I cant imagine how difficult it is to watch someone you love with all your heart change into someone different all the while, you are keeping a brave face. To me, caregivers are angels here on earth! I wasnt given the luxury of having one to help me get thru everything so I struggled. Your husband is so lucky to have you in his corner. I always advise caregivers to always make a few minutes every single day to clear their heads, even if it it only a walk around the block or a long hot shower. This helps them to stay balanced in the whirlwind of emotions and stresses. I applaud the selflessness of individuals who are able to carry so much on their shoulders for many months. Now is time you must begin to care for you! Dont hesitate seeking some professional help, your husband may need some too. Its a huge adjustment for both of you learning to live with new challenges. Donr be afraid to use any tools offered even anxiety meds. It will help you to help yourself.
(((HUGS))) and best wishes with everything!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |