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#14574 10-01-2003 07:15 AM | Joined: Mar 2002 Posts: 4,918 Likes: 70 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 70 | Even those of us that have not had the extensive treatments such as packer have been on feeding tubes for long periods. I had a particularly difficult time getting back to solid food due to the prolonged mucoscitis in my mouth. I was on the tube for about a year and wouldn't have made it without it. Gradually the soreness went down, the taste came back, everything but the saliva normalized. My water bottle is as natural a part of my hand now as my wedding band or watch. It can take a long time to get back to eating normally, so do not be surprised by that. And as Packer said, when the treatmetns are extesicve and radical, the tube can become a permanent part of your life. I think we all believe that the alternative is much worse....
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
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This is another custom island. This one could be used for ads. This spot is one of the best places for ads on your site to be placed. This can be enabled/disabled on a per forum basis.
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