Hi my name is Mary, my husband and I found out in May, he had cancer at base of tongue, and throat and left side of neck. He has been sick with sore throat and trouble swallowing for over a year. Then the lump showed up on his neck. Neither one of us thought about cancer, lump grew to the size of a quarter. In June he had aurgery, they cut him from ear to ear, down his left side to the shoulder bone, also split the inside and outside of chin and under. Had no idea how bad this was until after surgery. He had a graft from his left arm to rebuild the tongue and the free flap to swollow. Came out of surgery with g tube in. unable to swollow. When we came home about 2 weeks later his tongue became gray and was falling out of his mouth. Went to doctor, and he cut it off, said the tongue had lost it's blood supply, so lost all but the very bottom of tongue. We finished 7 weeks of rad, with all side effects.

I've reading the site for awhile, havent' heard of anyone being on a g tube this long, and not looking like he will ever come off of it. Also, with the lost of the tongue he is unable to talk.

sorry for talking so long.
thanks
Mary


Mary caretaker for John, diagnosised 6/03, stage 1V,left base tongue,epiglottis, left side 3/72, right side 2/12 nodes postive metastatic basaloid squamous,with perinodal soft tissue both sides. Rad 5580 cGy 31 fractons 8wks.