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#14574 10-01-2003 08:15 AM | Joined: Mar 2002 Posts: 4,918 Likes: 67 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,918 Likes: 67 | Even those of us that have not had the extensive treatments such as packer have been on feeding tubes for long periods. I had a particularly difficult time getting back to solid food due to the prolonged mucoscitis in my mouth. I was on the tube for about a year and wouldn't have made it without it. Gradually the soreness went down, the taste came back, everything but the saliva normalized. My water bottle is as natural a part of my hand now as my wedding band or watch. It can take a long time to get back to eating normally, so do not be surprised by that. And as Packer said, when the treatmetns are extesicve and radical, the tube can become a permanent part of your life. I think we all believe that the alternative is much worse....
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
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