Hi Penny,
You are going to have to advocate for yourself. I would be incredibly frustrated right now too. I'm so sorry you are going through this. Really, find an ENT who has OC experience. Everyone is right about that. I would not beat around the bush anymore. If you are concerned, pound the pavement until you have an answer.
When Kevin had oc he had one lymph node on the right side of his throat that was hard as a rock. It didn't move, smoosh or hurt at all. In his case he had had the oc on the base of his tongue for awhile and it had spread to the lymph nodes. (This node had been enlarged for quite awhile before he said anything.) One was huge, the rest were just enlarged. We were tossed around for 6 weeks before we finally got an MRI and then the biopsy, PET and surgical biopsy. By then he had major node involvement, but thank goodness it hadn't gone to his chest. If I hadn't gotten pushy, I know it would have been put off way longer because Kevin was not a smoker or drinker. None of his Dr's believed it could be cancer. It was HPV+, which is very common in BOT OC.
Anyway, all this to say...Be a pushy broad. It's YOUR life!!
Keep in touch with us.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14