| "OCF Down Under" Patient Advocate (1000+ posts) Joined: Aug 2007 Posts: 1,301 | I am so sorry to read these events with Linda especially as you both have been through so much already. I have nothing to offer but my love and thoughts. I know that things are different between countries and even states here as it no doubt will be in the US too. Here there are patient liaison people (officers) who are there to look after the patients best interests. Is there not something like that at the hospital that you can talk to? It seems that having a doctor that displays the attitude hers did is really not acceptable. Also due to language/accent difficulties it seems you are not able to communicate properly with this doctor. There must be a higher authority there that can help you with this. My hope is that someone with more knowledge of your hospital system can offer some concrete advice. My thoughts are with you Linda and your son..Love Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma. 14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad. 6 ops and debulking (flap/tongue join) + bx's 2006-2012. bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia 24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
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