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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | When using a feeding tube, it can be a long process until you are doing well enough to get rid of it. I know all too well how uncomfortable they can be and how much work it takes. It is not fun having one of these. A person recovering from treatment of oral cancer can expect a long recovery. Its something that cant be rushed. The better your nutrition, the quicker you will recover. Do not be shocked if it takes you a year. In fact, many people need 2 full years to return to their previous lives and then they still can have limitations.
I would suggest talking with a nutritionist. I worked with a wonderful nutritionist at the hospital I was treated at. In fact, she still helps me and its 4 years since I finished my radiation treatments. Your body needs extra calories and protein to heal. The formulas are balanced so you get everything you need (some lack fiber). If you can push yourself to eat more food then you can cut back on the formula. But only do so with a doctor's or nutritionists help. Good luck!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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