Yes Malo5

It happened to us and this is my current beef. IF the oncologists are so busy that they can't deal with our after treatment issues then the system needs to change!! Our contact person at follow ups is the RO and he has made it very clear that as far as he is concerned, my Alex has finished treatment with a complete response and is now entitled to a cursory check up as he has really sick patients to see.

The fact that Alex has not gone back to work, is so tired he sleeps 14 hours a day, can't swallow beyond liquids, and can't gain weight is of no concern to the RO. His job is done. I wouldnt mind so much if he had acknowledged Alex's ongoing issues and offered a referral to someone else to deal with after treatment issues but he hasn't. If he had done his job properly, and kept the GP in the loop, we could turn to him but unfortunately this hasn't occurred either. So now it is left to me to update the GP, on what Alex's issues are and what might be causing them and HE is the one that is dealing with swallowing, depression, fatigue, hormone imbalances, weight gain and pain.

All of us on this board are lucky that we have support to give us guidance on what the issues and possible solutions are. The ones I REALLY feel for are the poor buggers who never found this site, don't have the internet and have zero medical knowledge. They are just cut loose to deal with issues so awful for the patient that many of them are wondering whether it would have been better to succumb to the disease.