Senior Member (100+ posts) Joined: Feb 2011 Posts: 117 | Cheryl is absolutely right.... you need to be the squeeky wheel and make some noise. You know in your gut if something is wrong or of course if you have questions.Too often they are on to the next patient... unfortunately there is a never-ending line of new patients. My ENT said he does 6 neck dissections/tongue free-flap surgeries PER WEEK. If you can't (physically) speak up for yourself, get a friend to do it.... Many times its just getting past the one the phone gatekeeper. I have learned that if I don't get anywhere, ask for a supervisor... even nurses have bosses.
DX 12/6/10 of T3 SCC Tongue. Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear. Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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