Hi everyone,

Just wanted to let you know that we met our new team today. We've been back in our home town for 1 week and already we have met them. They appear to be great. They checked Steve over, checked all of his scans out and are fully up to date on his medical history since first diagnosed in 2009. They said today that for all intensive purposes they believe that because he is 2 years out of treatment without a reoccurence that he is considered cured. (Although we still have the 5 year all clear date) That's not to say it will never come back in another area and they said there is more chance of him dealing with this again because of his history but they were really happy with the fact that he was 2 years out and cancer free. Got to say I love the word Cure. Never, ever thought we would hear that word. In fact we were told early on that they didn't think they could cure him as the cancer was too extensive. So as you can all imagine we are very happy tonight and finally feel like life is starting to turn around for us.

As for his jaw and the osteocronsis, they have booked him in for a biopsy next Tuesday the 16th. They don't believe there is any cancer there and they are pretty confident that the damage to his jaw bone is radiation damage but they want to rule out any possible cancer before we begin HBO. So they will be taking some of the bone, some of his gum and also biopsying inside his throat as a precaution. They seem pretty confident that all will come back clear. The biopsy will also give them an idea of just how agressive they can be with Steve's treatment to his jaw bone. So things are finally moving forward with relation to his jaw. We spent over a year on a waiting list at the other hospital and here it's been 1 week and it's all moving ahead. They said they will remove as much damaged bone as possible to get to bleeding bone and then they will repair his gum and start HBO.

And to top today off we found out that our furniture arrives tomorrow so no more living in an empty house YIPPEE.

I found out also that there is a support group starting for carer's of head and neck patients so I'm hoping I can be involved in that in some way and hopefully be able to help some people along the way. Plus refer them all here lol. Thinking of you all often. Take care my OCF family.


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
17/03/22 lost the battle. Missed dearly