Dan, welcome to OCF! I know you will find lots of guidance here to help you get thru this. The best way to get thru this is to focus on your nutrition and hydration. The better you do with that, the easier it will be. Start aiming for a minimum of 2500 calories and 48 oz of water every single day. Dont think its ok to be short one day and make it up the next, it wont happen. Once you get behind, you cant catch up. Everyone is different and will respond in their own way. Some struggle from week #2 and others sail right thru.

As far as the PEG tube is concerned, there are many here who are very vocal about what is right. I had one and needed it! Even with the tube, I lost 65 pounds and ended up being hospitalized a few times for malnutrition and dehydration. That was just me, I was one who struggled but I also didnt have a caregiver. This was my experience, I was one who had a hard time. Hopefully you will not.

Thru the Amazon link on the main forum pages you can order Carnation Very High calorie nutritional drink. It has 560 calories per can so it makes it easy to get all your calories in.

Im glad you have lots of support, you will need the help. Even if its just to give your wife a day off. Caregivers are angels, but they get tired too and need a hand. Make a list of every single person who offers to help with their contact info. Tell them when the time comes you will let them know what you need.

Now as far as the weddings go, thats a biggie! Its next to impossible to predict how you will respond to treatment. If I were you I would ask your doc about doing chemo weekly instead of the 3 big doses. I was scheduled for 3 doses but was so sick I only got 2. The third one was canceled. Several other members had their 3rd round canceled to. I really detest telling you this but honestly, for the October wedding there is a good possibility that you wont be able to attend. The last 2 weeks of treatment and the first 2 of recovery are the hardest part. Many patients lose their voice around that time. Mine was gone for 3 weeks. I also was hospitalized. Around that time I was so sick I could barely walk and had my son push me in a wheelchair into the hospital. If I had to travel on a plane there would have been no way I could have done it. Even being around so many people and all the germs isnt a good idea. Your resistance will be low and crowded airports are not the most sanitary places. I am so sorry to have to give you bad news but its better to know up front.

I really hope you are a person who will sail thru this. Work on gaining some weight before your treatment starts. Push yourself with the water and calories starting now.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile