Hi again,
I am sorry that I was not clear. I guess what I meant by "what's coming up", I am thinking about the immediate. The next half of treatment and the three or four months following the treatment. From what I have read from this site some of you have had very difficult experiences and it has made me aware of what "might" possibly happen. I do not want to be negative but just prepared. You are all so right, everyone is different and my husband has been doing relatively well so far. Still eating some foods and his energy has been reasonable. I think that the next chemo will be more difficult and the pain will come but we have things lined up with friends and a place to stay that is much closer to the hospital for the last two weeks. We are currently traveling 2 hours for 15 minutes of treatment. Friends drive him there and I pick him up when I leave work early. I plan to be with him for each of the three chemos and will work from home when he needs me. I probably should take the lead from him and just take each day. I just want to make sure that I have everything "lined up" that we need.
What about long term effects? What kinds of things can happen?
David, I am so impressed and glad to hear that you are riding your bike 100 miles a week. My husband went to the gym everyday and I know that he will do that again.
Thanks so much for all of your comments.


caregiver for husband
diagnosed with oral cancer May 2011 after 6 mo
node lft side and several in jaw involved
Base of Tongue Stage IVA
7 weeks radiation
Cisplatin-3 chemos (beginning,middle,end) IntraV administration