Eric, I'm in awe that you can work out. I find it intensely unpleasant to even walk one block. I also have severe hearing loss from both the cisplatin and the radiation. My ear tubes are clogged and even though the doctor tried putting in tubes on several occasions, all the mucus defeats them. The hearing aides help but not with clarity so I have lost movies for the most part and also lost music which just doesn't sound like music anymore. I used to go to the LA Philharmonic frequently. It helps to know I'm not as alone as I feel. Thanks.
sinonasal undifferentiated carcinoma, diagnosed 1/09 8 wks radiation, destroyed both major and minor salivary glands, problems with very dry eyes, sinuses & ear tubes; carboplantin and taxol Tumor growing again 11/10: cisplatin and etoposide, 6 wks radiation follow-up scan in Aug
|