I use the toothpaste and mouthwash in the morning and then the spray throughout the day and a humidifier at night. I keep the gum when I'm running or working out. I have issues with with my teeth, they are breaking and deteriorating pretty badly even though I use flouride trays and take extra care of them. There's really nothing I can do there.

There was a trial drug for dry mouth for patients outside of the 5 year mark that was posted on OCF forums a while ago if I remember correctly but I'm not there yet. The way I look at it I just do what I can do and have to learn to live with the rest.

I do have issues sleeping, I used to use marijuana to help sleep but now I just work or exercise myself to exhaustion and then average about 3-4 hours. I also have hearing loss both due to the cisplatin and long term opiate use. It's frustrating but I've gotten good at reading lips, if I'm looking at you generally I can follow the conversation. Conversation is very difficult, the partial facial and tongue paralization and dry mouth make it difficult for me to be understood and I can no longer project my voice but I do what I can. If I'm not in a loud environment I can hold my own.

Anyway Patricia, there are several of us on these forums that have similar issues, I think you'll find plenty of people that can relate to where you are. We're a tight family here.

Eric