I knew I couldn't be the only one with things this bad; not being able to keep your mouth closed definitely adds to the distress and general awfulness. Can you sleep at all? Have you found anything that helps at all? The only thing I've found that helps is swishing my mouth (constantly) with Biotene mouth wash; for me it works better than the Biotene gel. I find trying to chew the Biotene gum very irritating. It is unpleasant to have anything in my mouth, even Biotene gum. I see you've been living like this since January '08. I was diagnosed in Jan '09. Tumor was found to be growing again in Nov '10 so I had second round of treatment. First round was 8 weeks of (long) radiation (25 minutes a day) for 8 weeks and many, many chemos (carboplatin and taxol). Second round was 6 weeks of radiation (only 10 min per day) and cisplantin and itoposide (I don't have that spelled right). Second round resulted in major hearing loss which hearing aids are not particularly good at correcting (they make things louder but don't help with clarity). And major problems with sinuses.
Thanks for answering.