Sandy, thank you so much for your supportive words. You seem to have it all together in such a short time. Is it that "California-state-of-mind" mentality?? jk, tho I wish I could 'go there' permanently sometimes. It's easy to get the guilts about feeling down, knowing what hell he has gone through is so much more, and I have no right to be feeling that way. All the while not wanting to show it on the outside, staying strong for him. And I get to see it all from this side - it is a cruel fate we have as CG's I guess, watching and waiting, watching and waiting.
Meanwhile we juggle appt. logistics, phone calls, diet restrictions and menu parameters , schedules, meds, questions from inquiring friends, all along with the usual daily routines that must go on.

John said the other day "I could not do this alone." That's enough for me to persevere.

Hugs to all you awesome caregivers out there.

Bonnie