ok, girls, you are ALL such wonderful caregivers! I have been down this road for over a year now, and it still seems surreal. Some days I think when I wake up, this has all been a bad dream. Does that ever go away???
My John is dealing with mets to lungs and has just been told his latest chemo is not working. His doc is recommending a new approach -- peptide immunotherapy -- a new clinical trial involving vaccines at a new CCC 4 states away from us. They are doing wonderful things with it for other cancers, I hear, and this one is specifically targeted for HPV+ SCCHN, but is in phase 1 trial. It is our last hope I'm afraid. If this doesn't stablilize it, I don't know what we'll do.
Sandy, your 'happy place' sounds like somewhere I need to be right now. How do I get there???!!??
Bonnie

Bonnie

CG to husb John, 57, love of my life for 35 yrs.
Dx 2/10, T2N2cMx, SCC BOT & lymph nodes.
Non smoker. Biopsy HPV+.
No surgery - IMRT 35X + 7 chemos cleared BOT
9/10-mets to lungs.
2 rounds chemo, last one trial drug which did not work.

Lost the battle, but walking in Glory 9/7/11.