Hi All,
I do appreciate the advise and opinions of you all along with your own experiences.

We saw the RO last week for the results of Kris's 9 week post treatment MRI.

We were told that "there has been a very good response to treatment" from his primary tumour at the base of tongue - his scans were reviewed at the weekly head and neck meeting so this is the opinion of the "team" .

This is fabulous news so we have at least cleared the first hurdle .

They will now send him for a PET scan to ensure there is no cancerous activity in the node that is still visible and that we can still feel. It is hardened and shrivelled.

I asked him again if they would proceed to ND if the PET showed the node was positive. Again he said no. They would do a Fine needle aspiration.

The RO told me that within 2 years no-one would be doing ND's as they are not necessary and the studies coming out now show this.

Guess I have to go with this approach - and I do want to. This is a whole head and neck cancer board/teams opinion.

I am just the wife who wants her husband to have the best, but I don't have their level of knowledge and expertise.

So, we will get the PET done and see what that shows.
One step at a time.

Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!