Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I am afraid that, that is going to happen to me. As each day more and mroe of my tongue turns white, like there is not blood flow, but it is painful. makes no since to me. Anyway I have an appt April 4th and will ask the RO about it then. They may want be to do mroe HBO treatments. It is so frusterating, isn't it?
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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