Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Is it possible the Dr didn't say part of his tongue is dead? I think we all agree with what Christine has told you so listen to her. I lost tongue on the right side then the left and finally the tip of it took a walk too. It sure isn't dead tho or it wouldn't pain so much and continually. Dry mouth along with severe scar tissue and radiation burns can make people think funny things. Go for another opinion for him. Go to a CCC and do it soon.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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