I made it home...still have arches and wires with rubber bands on my mouth and the feeding tube. It all comes out on Monday. Mouth is SO dry, and he wants me to rinse with mouthwash with alcohol...making it worse. I can drink but it is difficult so I pretty much use the feeding tube to eat and just drink water through my teeth.

I go Monday to get this stuff out and meet with the radiation and chemo drs to see what the new plan will be. Either way they are trying to get me to a 3 month PET scan so they can see what cancer is left and maybe use the radiation knife to get what is left.

Just so uncomfortable I haven't been able to post. Still sleeping on the couch as I need to nearly sit up.

Michele in IL

Female - 53 no smoke/drink
tongue Biopsy 8/2010
Surgery 9/21 for SCC left side tongue stage II. Prtl removal tongue/left side lymph nodes. All Clear
Radiation started 11/2, ended 12/17
Lymph node involved left side along with gum involvement 2/9 Fibular flap failed 2/22.
passed away 1/12/12