Hi Samantha,

Welcome to OCF! I truly wish that you did not need to be here, but it is the best place for support and information on OC!

I had OC twice and three surgeries so far (plus radiation). I had a biopsy a few weeks ago that showed moderate dysplasia, so I�m going to have another surgery in April.

I see you were treated at Johns Hopkins? Who is your doctor? I started seeing Dr. Wayne Koch at Hopkins last year and he will be doing my surgery in April. Great hospital and doctor!

I will keep you in my prayers. You are way too young to have to deal with this. By joining OCF, you will have people from all over the world praying for you and offering support and advice.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)