Cheryl,
I do so appreciate your kinds words. Knowing that I am not alone in my feelings and worries is comforting.
The reason for no surgery at this time is the location of it. They are afraid it would damage her eating, swallowing and speaking ability. They want to use that as a last resort.
And actually knowing that there are other people doing well with their treatment gives me a different kind of peace. That this horrific disease is not going to win all the time. And that by banding together and praying with masses that we can and will prevail.
Thank you and please keep us informed on your recovery.