Letitia,
You sound very much like my mom. You are doing a great job I am sure. It is not an easy road to go down for sure. I totally agree with the rinses that Christine suggested. Magic mouthwash didn't do much for me but the other one really helped with the sores. I was small and lost too much weight during treatment to need a feeding tube and am still on a feeding tube but I did not react well to rads and needed several surgeries after. I also lack motivation which sounds like your daughter is dealing with. Which is probably part of some depression too. I will be getting some meds for mine after I am healed from my surgery next week. I would also recommend your daughter talking to some people on this site if not getting on herself. It took me a while to get on here but I am so happy I did. I have met some great people. It sucks being young and going through this. If she wants to talk to someone she can email me.

I didn't see where the cancer is located? I understand that the doctor wants to preserve quality of life. Glad you found us all here and I hope that we can help both you and your daughter get through this the best that you can.

Brandy


31 at dx 9/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years
2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
HBO for ORN March & April 2010
Fibula flap 5/10