Welcome Gail. Everything you are expessing is normal to our little band at OCF. Eating is a constant question and problem. Do not get that PEG tube removed too soon. Just use it. I had mine removed too soon and continued to loose weight long after treatment was over. For me 20+ months out of treatment, my diet is still very simple. Eating is something I do because we all have to eat. My desire for food is just not there. I eat when the clock says it is time to eat. I used to me cranky about the fact that nothing tastes like I remember - but now I recognize that food is just food; it is there to sustain us. Find those things that are easy to eat and enjoy them. Don't worry about pressuring yourself into eating all the stuff you used to eat. Supplement your diet with calories from Protien shakes and liquid nutirent drinks. Make sure you get enough calories. It takes time to find your new normal. You will find it. Just relax and take it a day at a time.


DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10