 Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Welcome to our home Gail. As you will learn, ask questions and be prepared to force the issue with certain foods,. Yep , it will hurt and make you want to say forget this, but don't. Everything takes time and this disease has to be near the top of the list. Just do your best and then a little bit more as you proceed thru this journey.I went from much pain and torture to It's easing up a little and then back to the Damn this hutrs stage. I'll take whatever comes and listen to our family in OCF as they are always in the know about what is best. Most have been there and done that. Keep us posted.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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