Well, what a day....DH refused to go to appt and I said fine I would go and take the damned disks and talk to them myself as I am POA and HCR. So I leave and he emails them basically revoking my right to have his medical info because he "doesn't want me to get bad news and then have to drive home 2 hours by myself". BS - I was so freakin' mad that I just lost it in the doc's office, but hell no I wasn't upset and crying and driving on the stupid interstate for 2 hours because I can't get the info I need. I swear......and swear.......so I've got the disks, they won't tell me anything or do anything, although I gave them an ear full about what's really going on with him and at least got the hypotheticals of what to expect....yippee...I already had that from reading blogs and posts here. Some days I figure I'll just be on the psych ward or in jail. At present we just aren't speaking to each other. Another wonderful holiday season....and people wonder why I'm just not sally sunshine.
CG to H with SCC BOT T4N2cM0 dx 12/19/08, teeth removed pre-tx; Erbitux & RT-done 3/12/09, PEG 2/9/09-7/14/09; ND 6/16. Pet 6/12-no mets except lymph node in neck removed on 6/16. Chyle leak,2nd surg to repair. Dilate esophagus 4/15/10. Clear PET 12/17/10
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