 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Susan, Im sorry to hear you are having more problems. Its a good thing that you have gotten hydration. I hope its not the patch that is making things worse for you. Im surprised to read about the endoscopy due to pain.
Maybe Im missing something here?? People who are treated for oral cancer experience pain in places that other cancer patients do not. To me, it sounds like they are not familiar with oral cancer patients. Most of us who underwent radiation for OC had alot of pain that went right along with the treatments. From what you have written it does not sound like what you are experiencing is out of the norm. Just out of curiosity, ask the hospitalist how many oral cancer patients that he personally treats monthy or yearly.
Hope you feel better and can go home soon.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
