the most important thing here is weather you are able to get enough calories and water daily. It sounds like you are not meeting your daily requirements and that means you must get nutrition another way. It sounds like your doctor is the one who has an issue with peg tubes. Its imperative that you talk to him about your problems and tell him that you cant handle being able to get enough water and calories daily. Do not wait, talk with him immediately. Dehydration and malnutrition can sneak up on you very quickly.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile