 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Look into the nasal tube. I had one for about 2 weeks and it really made a difference when nothing else worked. There is no surgery involved. They just slide a plastic tube with a metal insert through your nose and into your stomach. Then they x ray you to make sure it's in a proper position and then they pull out that thin metal "rod" from the inside of the tube and you are good to go. Other than waiting the obligatory 2 hours to get an x ray the procedure itself only takes a few minutes. I was able to take showers, etc. When I didn't feel like I needed it anymore meaning that I was eating on my own without any problems I just pulled it out myself at home.
Bottom line.... whether you get pain meds that work; a PEG, the nasal tube, etc YOU NEED TO GET 2500 CALS AND 48ozs OF WATER EACH AND EVERYDAY.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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