 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Lori, I am so sorry to read your story about what is happening with yoru brother. I cant even begin to imagine how hard it must be for you and your family to watch this happen right before your eyes. Im sure you all must feel so helpless. Im very very sorry!!!! One thing that should be a huge help is hospice, its good that they are there helping him.
One medication that may be helpful for his pain is the fentanyl patch. It gets changed every 3 days, its much easier to keep him painfree with a steady dose of medicine. Ask the doc. Im not very familiar with hospice policies or if they can get a different medication, but maybe they could help with the patch.
Prayers to you and your brother.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
