I am one of the "Unknowns' also. I knew I had OC before the Drs finally check it and listened to me. I had never heard of this or knew it was OC until after the 1st Biopsy.

Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here