ChirtineB - thank you for the response and sorry if I am overposting.. sorry for all you have endured and you and everyone else on this site - although you are not Doctors, i think your experience and thoughts are as valuable maybe more than advice from some Doctors - Dads pain did seem to improve over the 3 days i was there since they upped his fentanyl patch dose and added gabapentin; Oncologist did mention if he chose to basically do nothing (maybe some more chemo and pain management) - she would come up with some other drug combos to deal with anxiety .. I think I will try to pursue a second opinion..

Dad is a retired nurse so is very good about cleaning his tube, etc.. I am hoping he can gain a few pounds by adding some more cans of ensure to his tube per day and I am also having him use some of the body builder high calorie stuff .. for the Dr stated it would be good if he could gain a few pounds prior to next procedure - whatever that may be..