Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Susan - My son definitely had a much different attitude towards food and progress was very slow with different tastes developing at different times. It's been almost 4 years now since his end of Tx and he tells me that his taste is about 90% what it was BC. He did have 1/6 of his tongue removed and he said that for that particular portion, he does not have taste but he tells me now that each portion fo his tongue seems to be responsible for certain specific tastes. In the early recovery days, he could not eat very much each time so I tried to get him to eat more often and accompanied by lots of water. Since everyone is different, there is no guarantee that what someone else likes will be pleasing to a particular person. So if you buy something he thinks he might like, don't buy a lot of it. I remember buying a big container of protein powder to mix in with his milkshakes and with just a small taste of it, he said it tasted awful and would have none of it ever. He has, however, developed likes for things that he never used to like before he had cancer, like brussel sprouts which he never liked all through his growing up years. Now, he tells me he likes that even more than he likes Spinach (his former favorite)! So - the "new normal" that you hear about on this forum can be really good as well as new.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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