 "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi again Laureanne,
Even though our operations were much the same I am surprised that you were only in hospital for around 8 days. I was 1 week in Intensive Care and 1 week on the ward and slowly lost all my tubes before I went home.
I only had the Nasal tube (NG) for feeding and that was removed around day 10.
You have been through major surgery and it will take time to heal. I was also a little frustrated when no one would give me a timeline for when the different parts would come good.
I have been on this forum for some time and again and again you will see the advise that everyone is different�it is true!
Did they not tell you at the hospital when the trach and peg would be removed? Are you getting any home help?
Patience was never my greatest virtue but you will need a lot over the next weeks. Try to rest and relax as this also helps with the healing process.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| 
