I KNOW EXACTLY WHERE YOUR COMING FROM!!! We are wearing the same shoes. I am trying to cope too it's been a lot longer, with a lot more surgeries and children who grew up only knowing this kind of life. But we are all the SAME!! It's very frustrating and heartbreaking. I am at the very exact page you are on. I know you don't know me but I do know my husband frustration and how that frustration is directed at you, the caregiver, It's a hard pill to swallow for all!!
Liz