[quote=davidcpa]My Dr Trotti, RO at Moffitt, who is not a big proponent of the PEG tells me that in his experience 30% of his PEG patients end up PEG dependent for the rest of their life. To me that's a real scary number. [/quote]

I wonder how many of his patients (who don't get a PEG) end up in the ER or hospitalized because of dehydration or being malnourished? There's a complication we didn't want to face.

Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2