Dr. Trotti's and Moffitt CCC's numbers of 30% PEG placements leading to a life time dependency is startling!

Dr. Trotti is an esteemed expert and Moffitt is a top tier NCI designated CCC. His concerns and experience warrant our attention.

We need to understand this issue. We certainly can not defend the common practice of pre Tx placement of a PEG when the odds are that a third of patients will likely never regain their ability to eat again.

I had always assumed our local support group was a representative patient sample. Virtually all of us had PEG tubes and are fine, but apparently we are not representative of the norm.

Perhaps some of us can check with our CCC teams and research some studies for clarification on this issue.