 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Here is my e mail to Dr Trotti and his response below:
I e mailed....
On the Oral Cancer Foundation website we were discussing PEG vs no PEG for the 1000th time, we call it the PEG WARS but anyway I said that the last time I discussed the PEG issue with my Dr Trotti he told me that his experience was that 30% of his or Moffitt's OC PEG users became PEG dependent.
Did I misquote you?
Please briefly explain.
David
And he replied......
I will reply to your OCF post, but your interp is a bit off. It is 30 at 1 year, 15 at 2y and 8 at 3 years in 2D RT era (pre 2005)---IMRT has been standard for last 3-5 yrs. The rates are lower for IMRT but data is just now coming in ....more later.
Andy
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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