Ashley, thank you soooo much for your response. It was what I needed to uplift my spirits. That is such great news that you were speaking in 2 weeks. It's so scary when they explain that surgery to you. Your like your going to do what? And it's going to work? I find it amazing. My sister not so much. She is still in a state of shock as is a lot of my family. I think once she goes for another opinion and they tell her the same she will accept it. She is very scared because they scheduled her surgery a month away and she thinks it is going to spread which I think every person diagnosed with cancer would think. I'm just not use to her being negitive like this and it frustrates me in my little head not letting her know. I guess like it hits me sometimes like holy cow my sister has cancer. It hits her more. Pat, we are trying out hardest to get her to be seen at sloan but it has been very challanging. We send one paper they need another. They need this from the insurance and that which is taking forever. We even told them we would pay cash for her first visit and they won't make an appointment. It has become very frustrating for us and very upseting to her. Hopefully we will get her in there. We also sent stuff out to NYU. I still don't think she will get an earlier surgery date. I think they are getting her in pretty fast. Not to her though she wants it out yesterday. She is so agraid that she will be dead I. 2 years. That's all she keeps saying. It's very scary. I wish she would become positive. Susan, wow no surgery for your husband that is amazing. I have a family member on my husbands side going for the same treatment as your husband at Sloan with the same cancer. He just finished the chemo and is going for rad on may 17. He is doing very well also. I really hope that we can get her into Sloan. She has medicade which is making it difficult. As of now we are going to keep the original surgery date June 2 until we can see someone else.
CG to Sister (42). Smoker quit @ diagnosis Dx 4/20/10 SCC T2N0M0, Rside of tongue Hemigloss R neck dis, all nodes removed 6/2/10, Trach and NG in, home 6/8/10,8/18/2010 start erbitux x6, 30 IMRT end 10/11/10 with only 3x erbitux due to reaction and one week off of rads 1/10/2011 Clear PET!!!
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