Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | David, Are you trying for the knucklehead award again? The doctor wasn't suggesting that the honey was going to give them enough calories for the day to avoid the peg. He was saying that it helps prevent the sores in the mouth that make it almost impossible for people to eat and thus might help them not need the peg.
And YES, other people on the board have used manuka honey and did NOT get the horrible mouth sores that many get. GAILMACs husband who was treated at Johns Hopkins I believe by Dr. Gillison was one who comes to mind. He had about the easiest time of any one I can remember on this board. Whether it was the honey or not, I do not know. They also used some other things which I don't remember at the moment that helped with his dry mouth. Try a search on 'Manuka' and you can probably find the strings.
Sorry to hear the honey is nauseating you. Maybe try a differnt flavor? Some people have used it quite successfully.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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