Wow! I guess I started a good topic here. I'm still working, so by the time I got home from treatment #8, ate dinner (mmmm... nothing like bland metallic food), and updated my blog for the day, I finally got a chance to read all the responses.

I can't find the specific research my RO is doing (it is possible it is still in the process of being published), but I ran a pubmed search on "honey oral cancer" and found this.

I found a way today to take it by putting it in the front of my mouth, then swishing/swallowing it with a swig of water. I didn't gag, so success. Hopefully I can try to take smaller and smaller swigs of water until I don't need it.

So far, no mouth sores, no sore throat and I'm feeling pretty good. The only major complaints so far are the nausea/fatigue and loss/change of taste.

Three other things I'm doing to prevent mouth sores:
1. 5mg Salagen (pilocarpine) 3x a day
2. Shots of Ethyol (amifostine) before ever treatment
3. Gelclair swish - supposedly 3 times a day but it's RIDICULOUSLY EXPENSIVE, so so far I'm just doing one a day

My RO is throwing every possible known study to prevent mouth sores at me. I'm only 25 and when I started crying when I asked him what this was going to do for my quality of life he took out his prescription pad and wrote down all of that.

Hopefully the honey treatment idea can be beneficial to lots of other folks out there in treatment now too. smile


9.29.08: Dx @ 24 w/ T2 SCC, tongue
10.14.08: Partial gloss. & r. neck dissection. Margins/nodes all clear. No HPV. No rad.
10.06.09: Recurrence in l. lymphnode
11.16.09: L. neck dissection + lost nerve XII
12.28.09: 33xIMRT w/ concurrent 3xCisplatin (no PEG)
02.15.10: Done with treatment!