Scott,
My husband tape every conversation with the Dr. as he did not want me to go with him in the beginning. I transcribed everything and words that I didn't understand, I researched them on the net. That was invaluable to me as Jim is extremely private and sometimes he just didn't want to hear, so he let the recorder be his ears.

As far as SSI - I did the paperwork and it was EXTREMELY THOROUGH. I had all my ducks in line and he was still declined. We then went with what Linda is suggesting and had a previous employee for SSI complete it and she took her one time fee out only if approved - it got approved and she took her fee immediately and he received the rest. IT WAS WELL WORTH IT, TOO! This forum has saved me sooo many times. Visit us often as there is so much to learn. Have your sister keep a notebook in the beginning as the meds, treatment and trying to filter ones way thru this maze is overwhelming to say the least.

Good Luck!
Paula


Caregiver to Husband 50 yrs.young-non smoker/non-drinker; Stage IV - all treatments stopped August 2009
Lost the battle November 23, 2010