 "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | Oh Margie, I wish I knew the words to say to make you feel better. Hang in there. There are people here on this site that will help, of that I'm sure. One thing I can say is don't lie to your doctor about the pain. If the pain is there then you need something to help. From a carer's point of view the pain is one of the worst things to watch. Once there is relief from the pain things seem much easier to bear. Just don't give up. Speak to your doctor about stronger pain meds please.
Wendy
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
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