Cheryl, I do value your input. Thank you so much. I feel very much alone on this journey regarding mental health issues. But as you've said he may surprise us all.

I don't really know what you mean by what chemo do they give him. I was only told Cisplatin and instead of giving him one big dose weekly they are giving him four small ones thinking he might handle them better, I.e. Being gentler on him.

I have told my husband about your experience having rads first. I will follow it up with the specialist and ask about it.

Cheryl I have read that the treated area needs to be moisturised with sorbelene as often as four times daily. Is that correct? Also do you apply the cream before rads or after or both?

Also, I have written down a recipe about a milkshake that people have been recommending regarding calorie intake but I don't know what carnation instant breakfast is. I assume it's something American ? Are you able to tell me what a substitute would be?

So scared about the unknown but little we can do about it. Trying to be as prepared as we can in order to support him. Getting him out of bed and to get him to participate in 'life' - daily activities is one of the hardest things.

On top of it he's a smoker and yes, he has been told about the risks he's still smoking. Mental illness and smoking has always been linked together and I'm hoping he will stop - better has the will to stop. It's a worry �


Heike

Working caregiver of my husband (51) Simon

03/2014 oropharyngeal cancer, stage IVB, T2N3M0, HPV 16 +
04/2014 Neck dissection - 39 lymph nodes removed, one node positive greater than 6cm, tumour in tonsil reaching into soft palette
28/04/14 begin of treatment
33 x RADS 66 Gy, 33 x chemo cisplatin 13mg each
29/04/14. pick two lines
12/06/14 finished treatment
09/ 14 Pet scan clear