Has anyone else been diagnosed with Stercoral Colitis? My body has been put through the wringer for 21 years. System failure and organ damage. This is the latest and I’m afraid it will be the end of me.

Hello, my mom is a 67 y/o female with a rapidly growing left SCC tongue tumor that is pd-L1 + and > 4cm. From the PET, they see 1 likely node involved, but the tumor crosses the midline of her tongue so they would treat both sides. She also has other health issues including past significant arterial complete blockages that have been repaired at Cleveland Clinic 2 years ago. She has kidney disease that is moderate related to this.

We've had 2 major medical centers in Chicago, IL review her case. 1 is suggesting immunotherapy then surgery, then radiation and likely chemo. The second, University of Chicago, is suggesting chemotherapy and immunotherapy immediately, then likely surgery + radiation. I've been looking up the trials and there seems to be good support for immunotherapy prior to surgery, but the chemo before therapy seems to be reserved for inoperable tumors or recurrent cancer, neither of which is her case. U of C is a pioneer in tongue sparing approaches but I know its not the typical care. Im her advocate and ultimately she will look to me to help her decide. I'm so scared to make the wrong choice. Has anyone had chemo and immunotherapy as a neoadjuvant therapy, then a subtotal glossectomy and radiation? Or aware of any data to support it? Thank you.

First I want to say that I had a laryngectomy back in 2001. In late May I was diagnosed with cancer on my tongue and on Jun 17 I had surgery to remove 2/3 of my tongue, a skin graft from my left wrist, another skin graft from my right thigh, and an emergency fasciotomy on my right hand, forearms, and upper arm because the IV failed during surgery. I’m 75 years old and I spent 8 days in the Surgical ICU. I’ve been home for almost a month now but I still can’t talk or eat because of the swelling. Thank goodness the Dr had a Peg installed before surgery. Next week I’m going to meet with the Oncology folks to discuss possible radiation treatment or immunotherapy. I don’t think that I can go through the rigors of another radiation treatment. I went through radiation in 1997 and IMRT in 2003. I would like to hear experiences you may have had with immunotherapy. Thank you.