Right Tongue to Right Armpit PET/CT Lymph Nodes? ChrisCQ 10-19-2025 03:28 AM
Howdy Folks,
Had my first PET/CT last month. Head and neck wise it looks decent, some uptake, but I guess that's common and usually just reactive (infectious / inflammatory) response from oral cavity and all the germs, and radiologist deemed "likely reactive".
The armpit lymph nodes are concerning to me.
Hoping to get scheduled for a fine needle biopsy here soon (would kind of like them excised out, but I guess that's a complicated surgery with significant risks and likely long term effects...).
With my micro invasive and small tumor no neck dissection or sentinel lymph nodes were taken.
Had a CT a year before, but this was my first PET.
Only mention of an actual spread from tongue eventually to armpit lymph nodes here on the forums comes from, Rest in Peace, Cindy721. That was like 4 years after her neck dissection and treatments, after she had a recurrence from much more advanced disease.
My concerns mostly lie with a second primary cancer.
Radiology at the CCC was supposed to be looking at the images to determine if a fine needle biopsy would be a good option. Has been a couple weeks and have not heard, so just "re-pinged" them tonight.
Very few instances of this kind of thing in the literature that I could find too.
Could just be reactive to a Vaccine a month prior, or a stupid yellow jacket sting.
I am itching to just get them biopsied.
Reading from Cindy's (RIP) accounts, it sounds like she had several experiences with false negatives on the fine needle aspirations, and insisted on excisional her last go around with them.
From what I've read on here, some folks are dead set against them, others seems to think when done well they are a reasonable initial step.
Has anyone experiences something similar? Or have any suggestions?
Thank you,
Chris
---------------------------------------------------------------------------------------------------------- HEAD AND NECK: Mild mucosal thickening in bilateral maxillary sinuses. Scattered subcentimeter bilateral cervical lymph nodes in level IB, II and III with mild FDG uptake, likely reactive.
CHEST: Lymph Nodes: Several FDG avid right axillary lymph nodes, for example: * 10 x 10 mm right axilla level 3 lymph node with SUV max 3.5 on image 133 * 15 x 7 mm right axilla level 2 lymph node with SUV max 5.7 on image 139
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Read More | | Mild Dysplasia on Tongue tbo1986 10-13-2025 05:09 PM
Hi Good People,
I'm a person of foreign origin staying in one of the Western countries. I am tbo, male, early 30s and straight. I have a history of HPV infection in my genitalia. It has been cured since then. I have gotten 2 shots of HPV since then.
I have been having on and off pain in the right underside of my tongue since mid-last year. I have been procrastinating since I did not have insurance details. A few months ago, my PCP identified a white patch under my tongue which I failed to notice. She recommended me to an Oral Surgeon.
Last month, I had my tongue biopsied, and it came back with the result of "EPITHELIAL DYSPLASIA, MILD". I do not have a chance to talk to an oral surgeon till the end of next month and am concerned. I want to know if anyone faced similar situation in the past and what was the prognosis? Any sensible responses will be much appreciated.
The pathology report shows as below. Diagnosis: FINAL DIAGNOSIS: EPITHELIAL DYSPLASIA, MILD MICROSCOPIC DESCRIPTION: Multiple sections show keratotic stratified squamous epithelium exhibiting mild maturational changes. These changes consist of basilar hyperplasia, nuclear hyperchromaticity, cellular pleomorphism and increased numbers of mitotic figures involving the lower one third of the epithelium. The underlying fibrous connective tissue stroma contains an infiltrate of lymphocytes. The dysplastic changes extend to the inked surgical margins. NOTE: Any residual lesion should be excised and submitted for microscopic examination. In addition, any irritative factors such as tobacco usage or alcohol intake should be discontinued. 02 [u][/u]
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Read More | | hello Peggy Sax 10-07-2025 07:24 PM
My name is Peggy Sax. Maybe some of you remember my husband, Shel Sax, who died August 8, 2024. This is the first time I've visited the forum since then. Shel lived for 20 years after his initial diagnosis, always devoted to The Oral Cancer Foundation, where he spent countless hours donating his time. He loved and deeply valued this community. Brian Hill was his mentor and a true superstar. This community was a lifeline for him. Once, Shel even went to Las Vegas to meet others from this community in person! You can also learn more about Shel by scrolling down on the Key Staff tab: https://oralcancerfoundation.org/about/key-staff/. Thank you, Brian, for remembering Shel here. I'm writing to thank you for building this community. It's emotionally challenging for me to revisit forum posts, and at the same time, very comforting to experience the support, inspiration, advice, and expressions of deep kindness. All my very best to all who are enduring this journey in whatever capacity. Peggy
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