Hello,

My name is Brad. I was diagnosed with HPV positive cancer in 2018. How I even discovered that I had cancer is quite miraculous, perhaps I’ll share that later. After a radical Tonsillectomy on the left side things seem to be great and I learned to swallow, my voice returned to near normal. Nearly 7 years later, I discovered swelling on the right side of my neck. The CT scan just revealed that I have a mass on my Nasopharynx.

Has anyone in this chat experienced the left and right radical tonsillectomy? My only concern is the recovery. I’m sure it all depends on the size and the exact location of the tumor. It would be tough to live on a feeding tube and not be able to speak. But God is good and I will trust him regardless of the outcome.

Also, I would love to hear someone else’s experiences with first bite syndrome.


Thanks!

Hi everyone,
My 54yr old, otherwise fit and healthy husband was diagnosed with cancer in his jaw in later February. He had an almost complete mandibulectomy 4 weeks ago and was left with 2 molars on the right hand side.
He is doing well and thankfully no setbacks which we are grateful for.
His main concern at the moment is swelling- can anyone please share their experiences as to how long it took for the swelling to go down both externally and internally? And was there anything you did to help reduce the swelling?
Thank you in advance

Do folks have thoughts on the best screening mechanisms for those who have existing high-risk HPV oral exposure / infections?
I haven't found much information on the forum about some of these:

- It seems a regular OraRisk test could - with only moderate sensitivity - help determine if the infection is still active, or has been cleared
- Is the Viome Oral Cancer Detect test - which claims high sensitivity for OSCC - an effective screening mechanism?
- And of course, a regular oral screening from an ENT and dentist could detect early lesions

Any other recommendations or thoughts?

I believe I emailed earlier, like last month sometime as a new member about my dry mouth and no appetite. Finished radiation the beginning of August/24. Tried the one medication that was finally suggested and no relief. Tried 3 Rx of acupuncture from a doctor who claimed they had treated dry mouth before and no benefit. Now I am waiting to see a special oncologist who is supposed to have some therapeutic input to resolving my dry mouth and no appetite. I don't know where to check, but I will search, for feedback on my first post about the same