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Introduce yourself Jump to new posts
Recovering from surgery Goodpn 07-23-2025 07:03 PM
First I want to say that I had a laryngectomy back in 2001. In late May I was diagnosed with cancer on my tongue and on Jun 17 I had surgery to remove 2/3 of my tongue, a skin graft from my left wrist, another skin graft from my right thigh, and an emergency fasciotomy on my right hand, forearms, and upper arm because the IV failed during surgery. I’m 75 years old and I spent 8 days in theEXPAND ▼
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Introduce yourself Jump to new posts
Introducing Boost305 – Mobile IV Therapy in Miami Boost iV Miami 07-18-2025 08:23 PM
Hi everyone, and thank you for creating such a supportive community.

I’m part of a wellness-focused team at Boost305, a Miami-based mobile IV therapy service. We specialize in helping individuals feel better through hydration, immune support, and recovery-focused IV treatments — delivered right to your home or recovery center.

We understand how important it is to stay hydrated, nourished, andEXPAND ▼
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Long-Term physical and QOL Issues related to treatment Jump to new posts
Re: Failed implants donfoo 07-17-2025 06:12 PM
Heather,
Thanks for the info. Dental Oncology is such a rare specialty, it was very a difficult search. I am treated by Dr. Ryan Lee, offices in NYC and Boston. He is doing excellent work on my restoration. He offers a 40% discount to oral cancer survivor, still a significant expense, at least for me. I've made two visits, one more scheduled in September.

His connections and relationships toEXPAND ▼
4 2,803 Read More
Long-Term physical and QOL Issues related to treatment Jump to new posts
Re: Failed implants HeatherB 07-17-2025 03:50 PM
Hi DonFoo -

I had a dental oncologist (10 years ago) who was excellent when I lived in Orange County (I think you are in SF, yes?). His name is Dr. Nelson Lowe (714-550-7474) and he is in Santa Ana. If you call him he might have referrals for your local area. If you can’t find anyone near you, he is worth a visit (call first to make sure he can help your situation).

Heather
4 2,803 Read More
Introduce yourself Jump to new posts
Re: New here - mother keeps delaying mandibulectomy HeatherB 07-17-2025 03:40 PM
Hi SPM,

I just came across your post from May. Did anyone get back to you? I am sad to hear what your Mom is going through (and by default, you). You asked very good questions. Have they staged her cancer yet? If they have said she needs a mandible removed it sounds advanced? I can’t answer any of your questions from a professional standpoint but there are others here who can. Try reposting yourEXPAND ▼
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Long-Term physical and QOL Issues related to treatment Jump to new posts
Re: Dental Woes HeatherB 07-17-2025 03:15 PM
Sadly, from what I am currently experiencing, oral surgeons are not keen to place implants in mouths that have been irradiated. I thought the same (and was griping about the potential expense) but they now prefer to extract if the tooth is infected and NOT replace unless it is in the form of a bridge (which impacts the healthy remaining teeth). Root canals are still used to preserve teeth,EXPAND ▼
11 5,362 Read More
Introduce yourself Jump to new posts
Re: New here! Starting radiation today Nels 07-08-2025 07:56 PM
Hello Gamjagirl,

Welcome to OCF and I am so sorry to read of your father's cancer. You should be able to find tons of good info by searching on different key words under treatment. I went through surgery, somewhat similar to your father but simpler, and radiation about five years ago. Regarding radiation - eat as much as you can to keep your weight up. The first 2-3 weeks should be relativelyEXPAND ▼
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Introduce yourself Jump to new posts
New here! Starting radiation today gamjagirl 07-07-2025 01:20 PM
Hello everyone,
Ive joined this forum on behalf of 66 yo my father who was diagnosed with stage 4 floor of mouth cancer. He doesn’t speak fluent english but i wanted to join to ease both his and my mind by reading other people’s testimonies.
He went through a 12 hour surgery (neck dissection) that consisted of removing a small part of his jaw bone and putting a titanium plate across the bottom forEXPAND ▼
1 511 Read More
Medications, Treatment, Procedures Jump to new posts
Starting Radiation today gamjagirl 07-07-2025 12:57 PM
Hello everyone,
Ive joined this forum on behalf of 66 yo my father who was diagnosed with stage 4 floor of mouth cancer. He doesn’t speak fluent english but i wanted to join to ease both his and my mind by reading other people’s testimonies.
He went through a 12 hour surgery that consisted of removing a small part of his jaw bone and putting a titanium plate across the bottom for support. HeEXPAND ▼
0 250 Read More
Coping / Anger and Fear Jump to new posts
Re: Survivor guilt hitting hard today Nick14 07-03-2025 04:13 PM
Hello Danbert, steve1 and JamesD,

I find it hard sometimes to discern between survivor guilt, which I have recognized it, and living life to its fullest given my daily side effects since caner free from HPV p16 positive in the spring of 2024. Lots of radiation to cure the cancer however since that ended in August/2024 I have terrible side effects of a dry mouth or xeorstomia and absolutely noEXPAND ▼
3 8,055 Read More
Introduce yourself Jump to new posts
Hello! BHLH865 07-01-2025 12:34 AM
I'm not new, formerly poster Ray1971 but unable to get into my account. So here I am...still kicking at 54!

I'm sure members have come and gone over the years--but hope everyone is doing well!

For those that are just going through these times, stay strong. I've been clean for 17 years.

Ray
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Eating, Speech, Swallowing, and Alternative Feeding Jump to new posts
using finger to eat - assistive eating tool Angilee 06-28-2025 04:13 PM
New here and realizing I should have put my previous message in this forum column, so please forgive the redundancy:

Reaching out to say hello and share a little optimism.
In 2021, I was diagnosed with SCC stage 3. I had my entire oral tongue and part of my base tongue removed. I was on a feeding tube for a full year with limited speech and saliva, and aspiration challenges. I thought I would onlyEXPAND ▼
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Introduce yourself Jump to new posts
Help with eating again, post surgery Angilee 06-28-2025 04:02 PM
Hello!
Reaching out to say hello and share a little optimism.
In 2021, I was diagnosed with SCC stage 3. I had my entire oral tongue and part of my base tongue removed. I was on a feeding tube for a full year with limited speech and saliva, and aspiration challenges. I thought I would only be able to eat pureed foods for the rest of my life, and was seriously considering looking into disabilityEXPAND ▼
0 258 Read More
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