#97984 06-23-2009 04:01 PM | Joined: Apr 2009 Posts: 17 Member | OP  Member
Joined: Apr 2009 Posts: 17 | I am going to OSU on Mon. the 29th to see the ENT there for evaluation/treatment for the dysplasia on my tongue. I had a biopsy in April and saw 2 ent's here who told me to "just watch and wait"....not! In the mean time they found a small complex mass in my ovary that needs to be addressed also. I'm just tired if waiting around and I want answers. After reading lots of posts here I was determined to get to the CCC asap. Wish me luck and I'll let you all know what's up. | | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | Good for you. I have never been a fan of "we'll keep an eye on it". This can be an aggressive cancer and needs to be addressed in the same manner.
Keep us posted.
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | You need to be your own advocate in this war as any waiting can be costly, you did good!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I want to wish you all of the luck and send you prayers Jackie. Have you had Dr Enver Ozer at OSU? That's who myself and JeffL had. He's good .I was in a study there until I had to opt out for the rads, chemo and seed implants.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2009 Posts: 1,844 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2009 Posts: 1,844 | Good Luck! Go Get Em and Keep your chin up!
Eric
Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Jackie, Iknow if you meet Dr Weed you will remember him. LOL Bow Tie and all his rude mannerisms. But he is very good , after you get past his rudeness. He looks like Mr Manners... I still laugh when I think about him.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2009 Posts: 17 Member | | OP Member
Joined: Apr 2009 Posts: 17 | Thanks for the support everyone. I know about dr's and bad bedside manner. Neither one of the ENT's that I saw here even put on a glove to examine my mouth, which I found completely unacceptable. So I'm off to OSU to get a proper evaluation and to ease my mind hopefully. | | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | Ditto the comments on Dr. Ozer and the folks at the James -- they are great.
I laughed out loud when Jim mentioned Dr. Weed. He gave me my pre-surgical physical before my neck dissection, and is obviously very competent, but very dry sense of humor. When I was in the hospital after the surgery, they were giving me these injections in my abdomen periodically, and I asked why. The nurse said "Because you are diabetic." My jaw and my wife's jaw dropped simultaneously, as I had never been diagnosed as anything close to diabetic.
When another doctor came to see me on rounds, he laughed -- "Dr. Weed things EVERYBODY is diabetic." He is very conservative, but very good. Again, though, he is an internist, so not a primary care doc for the cancer treatment.
Good luck -- happy to provide any insight you need on the James or the staff there.
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Yes Jeff. I was diabetic too and had the shots LOL what a character Weed is.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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