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#97398 06-15-2009 03:38 PM
Joined: Feb 2004
Posts: 598
JeffL Offline OP
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Feb 2004
Posts: 598
Almost to two years post treatment, and have the usual neck fibrosis from radiation, and shoulder pain and limitation from neck dissection. However, I also notice that I have increasing muscle pain and stiffness in back and legs after exercising or doing work.

I can do just about anything I did before treatment, except that things requiring arms to be shoulder level or higher for extended period causes a fair amount of discomfort. My golf game is actually better than it was, and I still care for the yard, etc. etc. -- I just pay for it more the next day. And this is more significant and constant than just growing older. ;-)

Anybody else experience anything similar?



Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

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I am glad you mentioned this Jeff. I work out 2 , 3 or 4 times a day. and I hurt like heck from it. Hummm wonder what it will do to my golf game? You have me thinking, i have to try it. LOL might m=not be able to hit the ball at all after this long off. I hope you feel better Jeff.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Posts: 83
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Posts: 83
I am 18 months out and notice it in my shoulders. I mention this to the Drs and they sort of say ....we did not do rads on your shoulders ? But it seems like I do feel it more now after doing a lot of yard work. Perhaps in my mind or just collateral damage. Although it has not seemed to help golf game...maybe I need more Rads...maybe not ! Played 108 holes the other weekend and was sore but I do think that was more to old age and not being in golf shape. Maybe your better golf is from a slower swing ? Still trying to get that concept through my hard head !


Bill Van Horn-53 ex-smoker, social drinker, Biopsy 8/24, Diagnosed 8/30/07 BOT T2N2-B MX Stage IV. Started treatments 10/1/07. IMRT 35 x, Cisplatin - 3 cycles - completed treatment 11/16/07. CT Scans on 1/15/08 all clear Selective neck dissection 1/28/08. All nodes clear.
Joined: Jul 2008
Posts: 507
"Above & Beyond" Member (500+ posts)
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Posts: 507
The shoulder pain could be due to the Neck Dissection.


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11


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